Category Archives: eating disorder
I celebrated my five year anniversary in recovery last week. Five years home from The Center for Change. I left that day thinking I could never maintain recovery and now five years later, I wouldn’t say I’m recovered but I would say I’m definantly in solid recovery. CFC has a tradition of having clients write a letter of hope when they leave to read to the current clients. I thought I would share a new letter of hope for anyone that needs it now five years later.
I am writing this letter now after five years in recovery. It doesn’t make me an expert by any means on what it means to be in recovery nor does it mean I can offer advice that you absolutely must follow to get well but I can tell you what has worked for me. As I learned five years ago listening to other women talk about their lives I learned that as much as we like to believe we are unique individuals there are certain things that we all have in common. And I hope what I share hits on those commonalities.
Hope. You must live and breathe hope. If you become hopeless you have given up and you will relapse. You must believe that you can recover. You must believe that you will beat the odds and be one of the ones who lives in full recovery. When you are lying in bed awake in the middle of the night and the hopeless feelings creep in, get out of bed and pull out whatever it is that makes you feel hopeful. Maybe it’s a picture album, maybe it’s a book of quotes, perhaps it’s your goodbye book, maybe it’s the Bible or maybe it’s watching your children sleep or holding your dog. Whatever it is allow it to remind you that there is hope in this world – your job is to hold onto it.
Know that recovery is a choice. You did not choose to get sick but you absolutely 100% can choose to get better. What this looks like may look different depending on where you are in recovery. Choosing wellness in the beginning of recovery simply means showing up to meals and eating what is placed in front of you. In five years the choices may be choosing to continue to eat intuitively when you’ve gained 10 pounds on a medication or making the decision that it’s time to tell the secrets you’ve kept hidden for almost ten years. The bottom line is, is that you must choose recovery each and every day.
Sometimes it is tempting to sub out the eating disorder for another self destructive behavior. You must learn that all things that harm you must go. The suicide attempts must go and so must the cutting. Holding onto remnants of self-destructive behaviors does not mean you are in recovery even if your eating is perfect. You cannot be in recovery until you give up everything that you do to harm yourself. Recovery requires that you to take care of your body.
I firmly believe that recovery does not require you to love your body. It requires you to care for it and to tolerate it but you do not have to LOVE all parts of it. If you are waiting to recover until you love your body or even like it you may wait forever. They say body image is the last piece of the puzzle to fall into place and for me I’m not sure I’ll ever even like what I look like. But I can take care of myself anyways. I can even dress as I want and take time to style my hair. Accepting your body must be the goal. It’s a bonus if you end up liking it or even loving it.
Recovery is a long and winding road. No two people’s journey’s are the same. If you are still struggling don’t despair. There is hope. There is always hope. And if you are in the tedious stages of beginning recovery. It gets better. It gets easier. And if you are like me – feeling lost in sort of a middle ground, stick it out. I have to believe that I’ll feel like I have more solid footing eventually. But overall, I must remember and so must everyone reading this that recovery is worth it. It’s always worth it.
- 5 – 10% of people die within ten years of contracting the disease.
- 18-20% will be dead after twenty years.
One woman and one girl has died from their eating disorders this past week who I met at my second treatment center. These make the fourth and fifth people I have known to have died from this disease.
I have been out of my first treatment center for five years. I have been out of my second treatment center for four years. I am scared as to what the next twenty years will bring for the women I grew to love.
When are they going to stop dieing?
I will remember you Nicki, Keir, Amber, Mattie and Aimee. I will fight for you.
I was messing around on Youtube today and ended up watching videos of Rich Mullins. Rich Mullins was a christian singer in the 90s who is famous for writing the song “Awesome God” and writing many other poetic songs. As a child and young teenager I often listened to his music to calm myself and find comfort. Anyways, I was watching videos of him today which I enjoy doing because he often ends up saying some pretty profound things before he sings and this one really hit home for me.
Sometimes even if you aren’t going to sin, it’s nice to be tempted.
This simple sentence describes why I torture myself by still immersing myself in the eating disorder world. I still check tumblrs of girls active in their eating disorder, read eating disorder books and just generally keep all of my ties to that world. It had previously made no sense why I had done so. I want to be done with my eating disorder. I am in recovery. I’m moving forward. I have better things to do that sit and wallow in that former life. But yet, even if I’m not going to relapse it is nice to be tempted too.
And why is that? Well, a part of me still finds that world familiar and comforting. I go there when I am afraid or think I need structure in life. If I still feel tempted to engage in symptoms it reassures me that I haven’t lost the power to return completely to the disorder. I may choose not to engage but it is somewhat reassuring that the urges are still there. That I’m not recovered because that terrifies me.
But is it right that I like to do that? Is it healthy? No. And it is something I need to work to give up to get to that place where I am fully and firmly planted in recovery. But Rich Mulllin’s simple sentence made sense to me and it was nice to put some words to those feelings I have when I visit those dark corners of the internet or fiction shelves. It’s very human and very normal to struggle to give up those last remnants of addictions or disorders and this was also a nice reminder to me. So I have identified another area of recovery in which to work. I have put some words to my feelings now which for me is always a start. The next step is working through them.
So this spring I had a lapse/relapse. I mentioned it in a previous blog entry that it started a few weeks earlier in August. Looking back I see signs way earlier than that. Back to spring and winter but it took times for the thoughts and feelings to turn into full blown behaviors and when they did as my pattern is I sunk downward quickly. There were immediately talks of sending me back to treatment possibly to a transitional IOP program but I resisted this strongly. I have done a total of sixteen months of inpatient and residential and I couldn’t imagine putting my life on hold, leaving Gus and adopting that sick identity one again. So that left one option and that was to let my parents help me.
Now there is a type of treatment for adolescents called Family Based Treatment where the parents take control of the teen/child’s food and are responsible for their recovery (I’m simplifying here). The assumption is that parents know how to feed their child and achieving wellness can be done at home instead of in a treatment center. Now having been to treatment and in treatment with girls who “failed” Maudsley (aka Family Based Treatment – FBT) I was horrified to realize that my family would essentially be doing something like this. I had heard horror story after horror story about how awful it was to give your control of food to your
evil parents. I believe in therapy I wailed something like “I am twenty-five years old I will NOT do Mausldey. How pathetic is that? Also, it’s evil” – paraphrasing.
But if I didn’t wish to return to treatment it was my only option so with pressure from my treatment team I begrudgingly allowed my parents to begin to take control of my food. This meant that they fed me three meals and two snacks. We met with my dietician and agreed how we would tackle fear foods. We all compromised and my voice was heard which was very important as an adult. We did a ladder system (starting with easy foods and working up towards harder ones). My mother was to pick meals and snacks – I could portion myself at dinner but she would watch me and tell me to add more if needed. Snacks she portioned. I also did not eat alone. My parents showed up every morning to eat breakfast with me and then again at noon to eat lunch (dinner was always a meal I ate at my parents). This has gone on from August until now. I am at a point where I am eating independently again but not portioning all of my food. I get my own breakfast but my mother sends a packed lunch and snack with me. I eat dinner with my parents and she feeds me evening snack. Next week I meet with my dietitian and I expect to either be able to portion snacks myself or receive full control of my lunch.
How do I feel about all of this now? Honestly, it’s a relief. I’m so glad I didn’t go to treatment and leave everything here. That was the last thing I wanted to do. I didn’t want to give up my control around food but I’m glad I had my parents step in. At the time my malnourished brain wasn’t thinking correctly and loosing weight (aka relapse) seemed like a great idea. But it was presented firmly to me that this would not be allowed to happen. My therapist and parents made it impossible. I resented that. And at twenty-five I still think that I should be able to control this myself (not because I resent their help but because I am an adult who should be independent). But now I am so grateful for their help. It wasn’t easy for my parents. It took time away from work and their schedules. And I wasn’t always the most fun person to eat with. I’m also sure it was scary to hear the same talk coming out of my mouth that they heard five years ago when I plunged into the deepest parts of my illness. I’m also thankful to my brother who put up with a lot of moodiness and pouting as I ate (not proud of that).
Not everyone has the resources to be able to turn it around outpatient but I’m thankful I could. I also have a sense of security now that no one is going to allow me to get as sick as I was in 2009. The thought of that truly does scare me when I’m thinking correctly. I have been promised that intervention will be taken before then. And this was proven to me here. And as for FBT being evil (or at least my parents and mine modified version) being evil I need to take back some words…
I’ve been absent (again) on my blog. For awhile it was touch and go with things related to my eating disorder. I’m back on a more level playing field but I wouldn’t call it stable ground yet. I began to struggle a few weeks ago. For numerous reasons that would take a lot of time to go into here and honestly I’m not quite ready to share. Anyways, after a lot of days of little nutrition, negotiations with parents and treatment team I’m at a place where I’m eating again with supervision and my safe foods. We are doing a step by step approach to add on scarier foods each week but this week was safe foods.
I’m eating because I’m supervised but I do have a choice. I could sit in front of my parents and say “nope. not going to eat that” but I haven’t. I guess it’s because I didn’t go totally downhill. I didn’t loose enough weight for my mind to become crazy and everything rational to be gone. I could still think and what I thought about was Gus. If I had had to return to treatment (which at several points was looking likely as the amount of food I was consuming was not acceptable at all) Gus would not have been allowed to go with me. At this point in our relationship and his training it would be hugely detrimental. We would loose all of our progress and he could potentially not become a service dog. I know this because I’ve done it before.
In August of 2010, I had adopted a young pup from the shelter. I named her Shona which is the name of the native language my friend from Zimbabwe speaks. I was just back from Laureate’s eating disorder program and was in a fast relapse after being home a month. I loved Shona deeply from the first time I saw her but a month after adopting her I was off to Utah to The Center for Change for another 5 1/2 months of treatment. While I was gone Shona had a great life, living with my parents but it wasn’t the same. They purposely didn’t try to bond with her so she would know she was my dog when I returned and she did but important time was lost. Shona was never meant to be a service dog at that time but those early months of her first year where she would have learned basic obedience and manners were lost and we never quite regained that ground. Shona never quite developed the level of obedience I wished until she was much older. And I believe this was due to my leaving her at a young age.
If I left Gus now at 8 1/2 months of age when he is so impressionable and our bonding is so important not to mention his service dog training and obedience training I truly believe we could never make it up. We would never become a service dog team. The idea terrifies me. I love this dog more than most things in my world right now and to be without him seems unbearable. So I was close to going back to some sort of treatment be it full inpatient or a partial program with boarding but I managed to create structure with my parents and treatment team where we created our own sort of partial program where I am basically receiving the same support I would had I gone to a partial program. I have meal support and we have defiantly upped the therapy time and amount of time I’m spending with my dietician.
Without meal support would I be eating? I wish I could say yes, but I can’t. Not right now. My eating disorder is really strong and the grip it has on me seems to be unbreakable. But I’m learning that this can’t matter. I do what I need to do anyways just with help right now. I don’t give myself a chance to skip meals or restrict my intake because I have a support team around me.
So am I in a relapse? The answer would be yes – if left to my own devices as I was a few weeks ago. Now I’ve been pulled out by other people. I’m letting them do the work right now while I comply and follow directions. I’m letting myself go on autopilot for awhile. I don’t have the motivation for complete recovery. I do have the motivation to allow others to help me. And this is the first time I’ve gotten to this place and allowed others to break into the dark, isolated world that my eating disorder has created. Progress.
And so I’m going along. Still living and existing. Starting school. Beginning a pet sitting business. Working with Gus both on obedience and service dog skills. Teaching him to swim. It’s nice to keep these things going and not have to loose them all while I go sit somewhere and relearn how to eat in an artificial environment. I am hugely grateful that my family has made it possible for me to remain in my world and still receive the help that I need. Hugely grateful. And so thank you family. Thank you for allowing me to stay home and remain with my Gus.
It’s not unusual for me to have nightmares. I have PTSD. Nightmares are a part of the territory. What is unusual is the what the content has been about lately. I’ve been waking up in cold sweats and shakes having dreamt about treatment and the physically sickest times of my eating disorder. It’s been almost five years since I admitted into my first treatment center. I was deathly ill. Almost dead. And honestly this fact has not truly dawned on me until recently. I knew intellectually that I was close to death but recently I have actually known I almost died.
I don’t know why it’s finally sinking in. Maybe it’s because of that short lapse awhile back or perhaps because it’s simply the amount of time gone by. I know there is a part of anorexia where sufferers simply don’t comprehend how sick they are. Maybe I’m past that. I don’t know. But regardless it’s terrifying me.
I’m remembering things I have forgotten and finally connecting the dots of what things truly mean. The fact that I couldn’t walk because my muscles atrophied. I was tube fed because I needed nutrition and I needed it faster than could be done through eating (I ate too but it was supplemented every night by tube feeds). I was sent off the hospital campus for MRIs, CAT scans and PET scans too see if my brain was functioning normal because I was falling so frequently and there was no obvious explanation. Test after test. And all the while stuck in that damn wheelchair. I slept on a mattress underneath the nurses station for a long time. Partly, because they were scared I would exercise but also because I would fall out of bed. Did I do that? I don’t remember. I don’t remember a lot of things.
I do remember how scary it was to not know why I was falling apart mentally. My PTSD was undiagnosed and I had no idea what a flashback was or what the hell was happening to me when I vividly began to remember abuse scenes. And the dissociation. Oh my God. The dissociation was so bad. And I had no words to even attempt to explain that. A friend guessed but the professionals didn’t. They missed it completely. And if I’m honest I still resent that. They believed I was making things up. Attention seeking. So did the other patients. The feeling of total loneliness and isolation still terrifies me.
I won’t go into details about particular scenes I am remembering but there are ones that are replaying over and over in my mind. I apologize for the amount of details I shared. I don’t like sharing a lot about the depths of my illness for the danger of being misread as competing with others or triggering them. But I needed to talk about this. It just seems all so….unreal but yet all too real at the same time. I needed to write it down. Somehow I needed to see it on paper. Get it out of my mind.
Has anyone else who has been in treatment experienced these kind of intrusive memories about the worst of their sickness and hospitalization. Am I unique in this? Please share if you can.
I’ve been struggling with my eating disorder. I’m ashamed to say that but it’s time to be honest. Not to be taken care of, not to be attention seeking but because lying and hiding does me no good. Also, it’s past time to get on track and in my case transparency has been the best motivator for that.
I’ve been in recovery from my eating disorder for almost three full years. I’ve been extremely proud of that. Extremely. In fact, out of everything I’ve done in my life I can say that this was the one thing I have been proudest of because it is the thing I have had to work the hardest for. And now? Well I can see it slowly slipping through my fingers. It’s a scary feeling for me and I know it’s a scary feeling for those around me.
What happened? I don’t exactly know. I suppose it’s been a combination of factors. Med adjustments, depression which caused loss of appetite, stressors, a lingering dissatisfaction with my body which never really went away, change and the biggest one of all – a significant trauma anniversary (which at one point I plan to write about). All of that collided and I let down my guard and the disorder slipped in.
I owe some apologies. At this point in my recovery I can’t slide back into my disorder without some awareness of my actions. There was some familiarity in the behaviors and feelings. They brought relief I was seeking but even that is no excuse. I owe apologies to my friends who fight everyday for stepping away from the battle and for leaving you to fight alone. It invalidates your struggle and for that I am sorry. And it goes without saying that I owe many apologies to those who love me.
So where do I go from here? Well, I try. I try to get back on track. I pray that I haven’t gone too far down the rabbit hole and that I can still yet pull myself out. I try with every fiber of my being even with my brain screams that this is wrong. I fight the biology of the disorder with everything I have and everything I have learned. And believe that I can regain the reground I have lost and come the end of February I can celebrate my third year in recovery.
We are headed into the holidays and many people may not realize how tough of time this can be for those who suffer from mental illnesses. Not just eating disorders but all mental illnesses. Holidays bring wonderful things – family, friends, traditions, fun and a multitude of other things but they also bring stress. I think that even a person without a diagnosed mental illness would agree with this.
In this case of eating disorders I suppose it goes without saying that Thanksgiving wouldn’t be that person’s favorite holiday. I am thankfully at a place in my life where I can enjoy the day spent with family and even enjoy the food but I spent several years anxious and unsure during the meal. In fact two years in a row I spent Thanksgiving inside a treatment center. However, Thanksgiving can also be difficult for someone suffering from anxiety, depression, bipolar disorder, PTSD or other psychiatric illness. Large groups of people can cause anxiety for some, seeing relatives that you haven’t seen for some time and a fear of being judged can be very fear provoking and just an upset in routine can be destabilizing.
In the time between Thanksgiving and Christmas I have been known to crash and crash hard landing in the hospital or treatment (I spent three consecutive Christmas’s in treatment – that sucked). This year I feel more stable and ready to enjoy the holidays than ever but I remember those days and look around me at others with a lot of compassion. Also, although I feel stable and 90% sure I won’t need the assistance of the hospital I also know that it could be hard to manage some of the stress that comes up. I love Christmas so very much that sometimes the anticipation simply becomes too much to bear. Odd right? But this adds to my anxiety level and I can become destabilized because of this. As the holidays approach look around you at those who could be suffering. Understand that it is not that they don’t enjoy being with you or dislike the concept of the holidays – it is simply the change in routine and the anxieties that Thanksgiving and Christmas can bring that can cause symptoms. I love the holidays but as much as I do I struggle with them and I think I can speak for many when I say that I wish I didn’t. I wish I could simply sit back and enjoy them. However, I have to fight through a lot of things in order to do this. At this point in my life I’m capable of doing it. But at one point I wasn’t. So have some compassion. Show some understanding and simply be there for others this holiday season.
I recently read this blog from momastery.com. I haven’t talked much in detail about my brief college years on here and I will one day but for now I wanted to share this blog because in many, many ways it sums up what I felt during that time and what I feel now looking back. There are some distinct differences (I had a net – a net that ultimately saved me) but also many frightening similarities. So please take a look at: